2 weeks post surgery

Trip Start Jul 25, 2010
1
17
20
Trip End Aug 03, 2010


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Flag of Canada  , Saskatchewan,
Thursday, August 12, 2010

Hello folks!!  It's been 2 weeks since the treatments and I can report that I have remained fairly stable.  I walk with a fair degree of confidence.  I find myself looking at the ground less and instead concentrate on ensuring to lift my feet.  I spent the majority of the weekend at the Regina folkfest.  Had to do a fair amount of walking to get to the park and then getting around.  Not much of a problem at all.  Had help with Fridays dropoff..thanks Erin. and then decided on Sunday to spend the majority of the day outside.  Went to Wascana pool and swam around for an hour and then off to the park.  It was about 28-30 degrees that day and I felt pretty good.  Was out for 12 hours and didn't really suffer at all.  Vast improvement on the heat tolerance!  Movement is more fluid, less spastic, less tremors,...not much change in vision, less brain fog, less vertigo, less pain... overall about 25-50% better!!
Absolutely fantastic but these symptoms (lack of) are not at the same time. They seem to change daily and rotate.  Strange but interesting and not the least bit disheartening... just different.
Went back to work on the 5th.  Great to see everyone!  
Still having stiffness in my shoulders/neck but it is slowly getting better.  Really want to be able to swim and will push things soon.  Need to get stronger in the legs and core...  doesn't seem to be that daunting though ... I'm just looking forward to the odd day of trying to workout...very cool.
So all in all a little better and that's amazing considering there is permanent nerve damage in my brain and spinal cord.  
So there you have it...pretty good.
You might have heard that there were trials in Germany and Sweden that disproved the existence of CCSVI in MS.  Well they didn't replicate the Zamboni protocols so they are basically irrelevant.  So they can  "bark my hole"!!  Testing is happening in more places and has started to pop up in N. America.  Great!  Hopefully won't have to travel too far to see if the veins re-stenosed or not...

Still good folks!  Thanks again!!!!!!
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Comments

Gina on

Awesome Doc thanks for this update. I am so so happy for you. I remember walking around with you when we were looking for your apartment and going to and from a few places with you during that time.....that was a few year's back already and I could not imagine you then being able to spend 12 hours outside in the heat, as I remember you were so sensitive to it...... so this item alone is amazing and would be a great relief in the quality of your life. So I can imagine how excellent it is for you to be experiencing many improvements at once. I continue to share with everyone I meet your MS journey and treatment so please keep the updates coming when you can find the time and are not busy training!!!. They mean alot to me and I am sure you are a direct link to many in feeling some hope about this treatment that continue's---- for no good reason to get mixed reviews. I agree with you if you have MS what do you have to lose by trying this and people suffering from MS that are interested in trying this treatment must just push forward themselves if they can and not listen to the one's that don't see the hope in it. I can only pray that soon it will become part of standard treatment for MS in this country and around the world.. if required and people won't have to pay for it like you did. Remember in history this won't be the 1st surgery that will recieve mixed review's or the last as great humans from this earth of ours continue to fight and come up with solutions in healthcare for those that need it most. It's people like you Mark that make those caring individuals feel good about their findings. They need people like you and much as you needed there expertise....brave patients... It's a team...... the patients and the Physicians who together who will be willing to try it and support it and push it to mainstream medicine..... But as alway's in life not everyone who could be playing in the game are team players...they refuse to because the don't understand exactly how the game works and for some reason they don't even want to learn it...crazy ...education as usual will continue to be key on this topic..........Blogs like this will alway's keep it in the limelight and make it better understood. I wonder if there is a Blog that people can join only if they have had the liberation treatment done and report the results...if not someone should start one. Would be an interesting and productive, positive read I am sure....way to Go Mark for your part in starting this blog and keeping us all connected. Look forward to reading more on your next update. Thanks for taking the time to do this......I wish you continued recovery success and happiness always. ps.....big Hi to your Mom too!

Aaron on

Afternoon Everyone,
Just wanted to let everyone know that the Hubbard Foundation in San Diego is now accepting applications for both testing and proceedure.
Great news.
A

Marg on

hi Mark. Kim gave me this website to follow - and i'm grateful you were willing to share. i was diagnosed in 1999, and am anxiously following the news on this treatment. your personal, and honest experiences have been invaluable to me. (and oh, how i laughed reading about Kim making friends all over the hospital - so Kim) Thank you for sharing, and bless you in your continued recovery from major surgery and a big trip on top of that.

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