Trip Start Jul 25, 2010
20Trip End Aug 03, 2010
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I was a more than a little pleasantly surprised to get off the plane and clear customs and there are my brother Colin, sister-in-law Karen, niece Maddy, plus friends, as well as Street Culture and Brenda and the girls from DOC's place; ok maybe it helped to have the founder of SCK travelling with me! CBC had sent a camera as follow-up and that was interesting. After being cramped in a seat for 8plus hours and little sleep, they wanted to talk about treatment outcomes and changes and that was a little difficult under the circumstances but chatted nonetheless. Still good to have them there.
I'm still less spastic and seem to be sleeping better. Still stiff and sore in the neck, back, shoulders. Tried to swim yesterday and ended up doing a lot of stretching; which was good. I feel better in waves...the good is really good and the bad is not that bad. It just happens and for now I can't figure out what it is but it takes me by surprise and I'll take your collective advice... to not push things too much. But a little..??
Lots of press lately and the naysayers are getting louder. Brad Wall has announced clinical trials for 2011 and that's a good thing as long as the question is to test the hypothesis and not based on proving that CCSVI doesn't exist. Watch the wording in the criticisms; all based on proving that Zamboni is wrong and not on replicating his exact research protocols.
This has turned into a medical mobilization that is unparalleled (I think!). Should be interesting next 6 months!
I'll be back to work pretty soon, Looking forward to it.
This trip has been an awakening of sorts and has left me wondering if the treatment will 'take'. I'm still hopeful as I see flashes of normalcy. It was absolutely worth it and would do it over again given the choice/opportunity/resources in a minute! Thankfully I had all of those; most people with MS do not. I am extremely grateful to be surrounded by people that truly wanted the best for me and hoped beyond hope that things would change for me. And they did...I said before that I'm not even close to having acting skills...duh!... and the skeptics said it was placebo based on psychological mood uplift. The 'after' video was just that...after. 36 hours after surgery and just out of bed. Nope there is something more to this.
This isn't a cure but there is a connection...
My gratitude to Kim is enormous. This was far from an easy journey; the logistical problems could have been monumental. Faith that I was actually on the treatment list, Airport to airport issues, ground transport, language/cultural nuances, waiting for surgery, post surgery, taking wrong trains, testing the body, security checks, customs, just having to deal with me! Sheesh that's enough in itself. Kim you are a great friend and thanks for joining me on the adventure!! And it was that an adventure!
Again thank you for all the well wishes and pep talks; they meant the world to me/us. We'd read them over, laugh, cry, agree, reminisce, and all a world away. Cory Ell, thank you! The song is amazing! Again all...thank you for your fundraising efforts and encouragment...Megs, Barb, Lynn, Rita, Terry, Darryl, Dick, Kevin & Chris, Dave & Steph, Russ, Karl, Rob, Karen, Maggi, Janet, Gene, Ann, Lynsey (Katie!), Jill, Dustin, Todd, Stephanie, Erica, Janice, Kevina, Nathan, Roz, Coach, Erin, Tina, Heather, Danielle, Sharon, Steph, Louise, Marita, Cathy, Eileen, Paul, Cheryl, Greta-Lynn, Joey, SCK, Joe, Raylene, Becca, Stacey, Patti, Roland, Shelley, Schills, Joel, Marty, Robin, Rebecca, Stephen, Laurie, Pauly, Mike, Denise, Mike, Kelly, Jim and Reed, David & Jolene, Rob, Stu, Gord, Kirk, Nicole, Kasia, Sue, Lauren, Lynk-coat, Marsh, Pauline, Jordi, Drew, more Halifax freaks, Mom, Colin, Maddy, Addison, Karen (Karen's family!!!), Buffalo (Dan, Brian, Daniel, and all !!!!) and the new friends from Bulgaria!!
I've missed a ton of folks, sorry in advance...I'll fix things!!! Thank you all!!!
I'll continue with some updates every so often but for now the journey is complete...